An official website of the United States government
Clinical studies help researchers uncover better ways to treat, prevent, diagnose, and understand human diseases. When you join one, you’re helping yourself and others.
Help us learn more about rare diseases
ClinicalTrials.gov is a website and online database of clinical research studies and information about their results. The purpose of ClinicalTrials.gov is to provide information about clinical research studies to the public, researchers, and health care professionals.
Rare Disease Registry Program (RaDaR)
RaDaR is an online resource website that provides patient groups with guidance on how to develop registries for rare diseases. Good-quality registries help support research programs and stimulate treatment development.
Rare disease registries
Gathering information about rare diseases is crucial for research. It informs treatments and improves care. Joining one can help connect you to clinical trials and specialized care.